Call for input: What is your view on sharing health data for scientific research?

February 08th 2021

Have your voice heard! Help shape the European environment for the sharing of health data for public health, treatment, research and innovation.

Researchers from all over Europe have joined forces in the BigData@Heart project. They combine health data from different databases to improve diagnosis and treatments of heart disease. 

Exchanging health data between researchers and research databases increases the quantity of available data and makes possible the forging of new connections and associations between them. For example, by combining data from different registries and electronic health records, researchers believe they can gain better insights into diagnosis and treatments of various diseases and conditions. However, to achieve this goal, it is essential to have the support and cooperation of patients and citizens, who are ultimately the owners of these data. It is therefore important to know what they think of such large-scale combining and sharing of data for scientific health research. That is what this survey is about.

Your opinion is important to us! By replying to our survey, you would be contributing to a better understanding of how health data should be safely shared, processed, and protected, and to the design of future data-sharing policies.

The survey is available in 11 languages.

  1. Click here to reply in Danish
  2. Click here to reply in Dutch
  3. Click here to reply in English
  4. Click here to reply in Finnish
  5. Click here to reply in French
  6. Click here to reply in German
  7. Click here to reply in Portuguese 
  8. Click here to reply in Romanian 
  9. Click here to reply in Slovenian 
  10. Click here to reply in Spanish 
  11. Click here to reply in Swedish

Practical information about the questionnaire:
Answer all questions to the best of your knowledge. There are no wrong or right answers. Your answers will be processed anonymously and merged with those of others. Input to the survey is gathered by researchers at UMC Utrecht within the BigData@Heart project.